I just wanted to put quick update that Levi was back home. He spent the past week with 'Papa and Nana' (aka Grandpa & Grandma). We missed him a lot and are glad to have him back home. He seems a little more indepentant and helpful ... not hesitating to help mom and very proud of his new sister, Sarah. I'm concerned about how this is impacting my little man Levi. He's said a few times he's scared of Isaiah because of his removed eye. Levi and Isaiah have always been very close, granted they're only 15 months apart. I fear that Levi will only be impacted more as Isaiah goes through chemotherapy. I'll ask a woman a Duke tomorrow who specifically deals with providing this kind of advise. Right now, Erica and I plan to keep Levi away from hospitals and seeing his little brother go through chemo. He'll definitely see what's going on at home. We've received a little criticism over this, saying that we can't keep Levi sheltered. These folks either don't have children or haven't had to deal with one of their own kids fight cancer. I include this because I want to keep this blog candid.
Tomorrow morning we're headed to Duke University for Isaiah's pre-op for his port-a-cath, hearing screening, and a tour of Duke's Pediatric Hematology/Oncology Department. We greatly appreciate everyone's prayers and support. Because neither Erica or I have family in North Carolina and since we've been lazy with finding a church since we've lived here, our greatest support locally has come from the parents in Levi's Preschool Class and our neighbors. I don't think there is a way that Erica or I can express our appreciation ... Thank You for all You have done for us in the past few weeks.
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Super sibs is a great program for siblings! Our other kids love the stuff they send and the personalized attention they get. Gracie's older siblings are 5 and 7. They are frightened sometimes by what Gracie is going through but are normally really good at being kind and loving to Gracie, particularly right after treatments.
ReplyDeleteAlso there are some great books from the Candlelighters foundation about cancer that are geared toward children. These are great for kids being treated, cancer siblings or friends or any other child to teach acceptance and love.
The Institute for Families also has an excellent book called, "My Fake Eye." It covers enucleation and prosthetic eyes in a way that kids can understand. We really like the book and our kids seem to as well.
Lastly, the Make A Wish Foundation is awesome at giving the whole family a real lift and positive outlook even amidst the ongoing struggles of cancer treatments.
Good luck with everything and we will make sure to pray for Levi.
Here are the web links;
http://www.supersibs.org
http://www.candlelighters.org/
http://www.instituteforfamilies.org/
http://www.wish.org/
We are keeping your family in our prayers. I'm sending you guys an email with some info from one of my friends.
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